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Update:  Back from Minneapolis and D.C.!  No more trips until June and July. 

For an update on our recent trips to Minneapolis and Washington, D.C., please click on "Our Blog" where you can read all about them.

Check out our facebook page!
Team Jarod/Team Caleb

Upcoming Fundraisers

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2nd Annual Pancake Breakfast!

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When:  Sat., May 19th
8:00 am - 11:00 am
Where: First Reformed Church,
630 State St.
                                      Holland, MI  49423
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Welcome!

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  This is Jarod and Caleb.  Jarod is eleven and Caleb is six years old.  They love to do things like most boys their age...playing sports, riding bikes, swimming and having fun with their family.  But their bodies harbor a deadly secret.

Jarod and Caleb were recently diagnosed with MPS III, also called Sanfilippo Syndrome.  Sanfilippo Syndrome is a very rare genetic disease.  Although it explains all of the challenges and delays Jarod has struggled with through his life (Caleb isn't exhibiting as many symptoms yet), it also means that their futures are grim.  Children with Sanfilippo Syndrome typically don't live beyond their teen years.  These boys will slowly lose their ability to speak, walk, eat, survive.

There is no cure for Sanfilippo Syndrome.  And there are currently no viable treatments.

We have a chance to fight this fate.  We need to raise awareness of the disease and promote research into possible treatments.  Ultimately we need to find a cure!

Will you help us?  Will you join our team to save Jarod and Caleb?

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Fundraiser Note:  All proceeds from these fundraisers go to the Team Jarod fund which helps with our medical expenses, therapies, respite and multiple trips to Minneapolis and Chicago to work with specialists.